Preventing systemic complications due to immobilization eg, pneumonia, urinary tract infection, thromboembolic disease. Preventing pressure ulcers Prevention Pressure injuries are areas of necrosis and often ulceration also called pressure ulcers where soft tissues are compressed between bony prominences and external hard surfaces.
They are caused Because cognitive function is intact and communication is possible, patients should make their own health care decisions. Some patients with locked-in syndrome communicate with each other via the Internet using a computer terminal controlled by eye movements and other means. Newly developed brain-computer interfaces may help restore the ability of patients with locked-in syndrome to communicate 1 Treatment reference Locked-in syndrome is a state of wakefulness and awareness with quadriplegia and paralysis of the lower cranial nerves, resulting in inability to show facial expression, move, speak, or communicate J Neurophysiol 1 —, From developing new therapies that treat and prevent disease to helping people in need, we are committed to improving health and well-being around the world.
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Common Health Topics. Videos Figures Images Quizzes Symptoms. Symptoms and Signs. Treatment reference. Coma and Impaired Consciousness. Paralysis of all four limbs. Mouth watering. Watery mouth. Feeding problems. Poor feeding. Frequent respiratory infections.
Multiple respiratory infections. Susceptibility to respiratory infections. Hearing defect. Do you have more information about symptoms of this disease? We want to hear from you. Do you have updated information on this disease? Related Diseases Related Diseases. Conditions with similar signs and symptoms from Orphanet.
Visit the Orphanet disease page for more information. Research Research. Clinical Research Resources ClinicalTrials. Click on the link to go to ClinicalTrials. Please note: Studies listed on the ClinicalTrials. We strongly recommend that you talk with a trusted healthcare provider before choosing to participate in any clinical study. Organizations Organizations. Organizations Supporting this Disease.
Organizations Providing General Support. Do you know of an organization? Learn More Learn More. Click on the link to view information on this topic. NORD is a patient advocacy organization for individuals with rare diseases and the organizations that serve them. The Monarch Initiative brings together data about this condition from humans and other species to help physicians and biomedical researchers. This initiative is a collaboration between several academic institutions across the world and is funded by the National Institutes of Health.
Visit the website to explore the biology of this condition. Orphanet is a European reference portal for information on rare diseases and orphan drugs. Access to this database is free of charge.
PubMed is a searchable database of medical literature and lists journal articles that discuss Locked-in syndrome. Click on the link to view a sample search on this topic. Quality of life in patients with locked-in syndrome: Evolution over a 6-year period.
Orphanet J Rare Dis. Chisholm N, Gillett G. The patient's journey: living with locked-in syndrome. Smith E, Delargy M. Locked-in syndrome. Santosh C. In acute locked-in syndrome LIS , eye-coded communication and evaluation of cognitive and emotional functioning is very limited because vigilance is fluctuating and eye movements may be inconsistent, very small, and easily exhausted.
It has been shown that more than half of the time it is the family and not the physician who first realized that the patient was aware. Distressingly, recent studies reported that the diagnosis of LIS on average takes over 2. In some cases it took years before aware and sensitive patients, locked in an immobile body, were recognized as being conscious.
Once a LIS patient becomes medically stable, and given appropriate medical care, life expectancy increases to several decades. Even if the chances of good motor recovery are very limited, existing eye-controlled, computer-based communication technology currently allow the patient to control his environment, use a word processor coupled to a speech synthesizer, and access the worldwide net.
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